Lolly’s Testimony at Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting

Here is a story we recently received from Lolly in Silver Spring, MD. The video is from the  Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting, Day 2, on June 14, 2012. If you would like to fast-forward to Lolly’s testimony, she can be heard speaking on Video 14 of the playlist (accessible from drop-down in top left corner) around 18:00-23:00. She gives a powerful, and incredibly well-spoken account of her struggle with Chronic Fatigue Syndrome (ME/CFS) for 27 years. Take a look…

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116 Comments on "Lolly’s Testimony at Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting"

  • lolly says

    Jason, the whole collection of tapes you posted are great, there are so many wonderful testimonies and this is a clear record of some of the strengths and weaknesses of the Chronic Fatigue Advisory Committee. If anybody is looking for my testimony thought it is tape 14 (not 5) at about the 18 minute mark. Thanks for posting.